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Improvements and pizza!

Yesterday, Garrett's blood work showed improvement: all inflammatory markers are down- thank you antibiotics!  They are planning on blood work again tomorrow and a repeat MRI at some point to track whether the abscesses are reducing. His team was going to move Garrett off IV antibiotics to orals in the next day or two, but his IV failed this morning so he's going to oral meds now. (Garrett has been flushing the line himself, as in that picture above!)


Garrett has started eating again, but refuses most CHOP food because, “Why would they serve kids anything this disgusting? I thought they wanted people to get HEALTHY!” But we'll take that as sign. Currently, it's pancakes for breakfast (CHOP does do breakfast well), Gia Pronto (restaurant across the street) pizza for lunch, and CHOP chicken fingers for dinner, with snacks strewn throughout (sun chips, Lays chips, cookies, fruit roll ups, Snickers Ice Cream bars, Rice Crispy treats, strawberries).


We are really hoping for discharge by the weekend, but may be overly optimistic. However, this is all just a short term plan. His outpatient team is not sure if this episode is a "blip" brought on by a virus, or part of his disease. They're discussing how to approach this if it's the latter.


So, still in a holding pattern as they monitor his progress, but Garrett is definitely looking and feeling better than he did last Friday!


As always, more to come...

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