Skip to main content

It's a medical fact...Garrett is a BADAS

Dermatology just let us know they received preliminary findings from yesterday's biopsy. In additional to IBD, uveitis, and psoriasis, they believe Garrett has Bowel-associated dermatosis–arthritis syndrome (BADAS), an uncommon dermatological condition that those with IBD and other medical conditions can get. It can cause fatigue, joint pain, fever and painful pustule eruptions on the skin, all of which he has right now. 

He will be treated with topical steroids over the weekend to try to keep him comfortable and a group meeting with several specialties, including dermatology, GI, rheumatology and neuro-ophthalmology will occur early next week to chart the best treatment course for all his underlying conditions. We hope that removing the colon will remove the main source of the inflammation and get him on a better path overall. 

Garrett has fevers and abdominal pain, not uncommon after surgery, but we hope he will feel better as the days progress. 

Comments

Post a Comment

Popular posts from this blog

Ultrasound and ice cream

Yesterday, Garrett’s right arm and hand began to swell below his central line and there is a significant difference in size between the right and left side. I asked for an ultrasound.  The ultrasound was very painful for Garrett. The sores on his body hurt to touch and he has quite a lot of large ones where the ultrasound probe had to be pressed. He screamed through most of the ultrasound prolonging the process.  Garrett does have a small clot, but it is not fully occluded. Typically, an anticoagulant would be started, but in a post-op IBD patient, the protocol is not as straightforward. Hematology and surgery are meeting this morning to determine next steps.  They want to save the central line in order to provide nutrition for Garrett, but need to determine the best course of action.  In the interim, he is on pain medicine for his arm (in addition to his abdomen and skin) as the swelling in his hand has now become significant and very painful. He can’t close his han...

Out of Surgery

Garrett had a successful stoma revision and is in post-op; we're waiting for him to wake up. Speaking with his surgeon, everything went well. It wasn't obvious what caused the small bowel obstruction (ie, adhesion or kink), but his doctor did think the opening in the abdominal wall fascia was tight and food may have obstructed it, leading to an inflamed and swollen bowel. More to come...

Garrett's Home!

Garrett is back home! Though tired, he wanted to try and catch the tail end of the school day at HFS. We thought it better that he just come home; he's already had some pizza and is relaxing in bed playing Roblox by himself. Gibson is not home from school yet, and all Garrett wants to do is play with his brother! Jill and I are happy that our house will be full again tonight. Thanks everyone for your thoughts and support this week!